Disability Information Management - SR-005

SR must have the capability to capture, manage, update, and track changes to disability status information.

Provides crucial information for disability-related programs and ensures up-to-date disability status.

• Capture disability status during registration.

• Update disability status based on new assessments or life events.

• Track changes to disability status over time for reporting and analysis.

• Identify individuals eligible for disability-specific programs.

• Beneficiary ID (or equivalent unique identifier)

• Disability Status (e.g., categories like "No Disability," "Mild," "Moderate," "Severe," or specific condition codes)

• Disability Type (e.g., physical, sensory, intellectual, mental) - Optional, but highly recommended

• Date of Onset/Assessment

• Date of Update (for tracking changes)

• Source of Information (e.g., self-reported, medical assessment)

• Notes (optional field for additional details)

• Data Capture: Structured data entry fields for disability status (and ideally, type) within the registration process. These fields must be configurable to adapt to country-specific definitions and classifications.

• Update Capability: Ability to modify the disability status fields, with automatic logging of changes (who made the change, when, and what the previous value was).

• Storage: Relational database (or equivalent structured data storage) capable of storing the required data elements and maintaining a history of changes.

• Data Capture: Integration with external health information systems (where available and with appropriate consent) for automated updates of disability status.

• Update Capability: Event-driven architecture, triggering actions (e.g., eligibility reassessment) based on changes to disability status.

• Storage: Document database (or equivalent) to allow for more flexible data structures and easier handling of evolving disability classifications

• Data Capture: AI-based data extraction from unstructured medical records (with appropriate consent and privacy safeguards).

• Update Capability: Real-time synchronization with external health databases (where available and with appropriate consent).

• Storage: Decentralized storage (e.g., blockchain-based) for tamper-proof records and enhanced data sovereignty.

• Disability status information must be treated as sensitive personal data.

• Data must be encrypted at rest and in transit.

• Strict role-based access control must be implemented, limiting access to disability data to authorized personnel only.

• Comprehensive audit logging of all access and modifications to disability data must be maintained.

• Compliance with GDPR and other relevant data protection regulations is mandatory.

• The system should be designed to handle large volumes of disability data efficiently.

• Real-time synchronization (at the Advanced level) requires a scalable infrastructure.

• Ideally, the system should be able to exchange disability data with external health information systems (at the Standard and Advanced levels), using standardized data formats and protocols (e.g., HL7 FHIR).

• APIs should be provided for accessing and updating disability data by authorized external systems.

• Compliance with GDPR (or equivalent data protection regulations) is mandatory.

• Ideally, data elements and classifications should align with international standards for disability data (e.g., the WHO's International Classification of Functioning, Disability and Health - ICF).

• Data entry forms for disability status must be user-friendly and accessible.

• Clear and intuitive interfaces must be provided for viewing and updating disability information.

• A visual history of changes to disability status should be available to authorized users.